The APS Type 1 (APECED) connects individuals and families around the world who are living with APS Type 1 (APECED), a group of genetic conditions that cause tumors to grow on nerves throughout the body and can lead to a wide range of health issues.

Created with input from both patients and researchers, the APS Type 1 (APECED) is a global tool designed to drive progress. By sharing your experiences, you’re helping researchers better understand APS Type 1 (APECED), uncover new treatment possibilities, and bring us closer to better care and better lives.

Join today and let your data tell the story that only you can share.