Contact Us
APS Type 1 (APECED)
Sponsor
APS Type 1 Foundation
P.O. Box 404 Stony Brook,
NY, 11790
https://apstype1.org
Registry Contact
Registry Staff
registry@apstype1.org
North Star Review Board
learningirb.org/
info@northstarreviewboard.org
An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org.
Social Media & Newsletter
APS Type 1 Foundation | Facebook
APS Type 1 Foundation | Instagram
APS Type 1 Foundation | X
APS Type 1 Foundation | LinkedIn
Newsletter Signup
Visit the National Organization for Rare Disorders home page at rarediseases.org.